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People living with neurological conditions and the Social Services and Well-being (Wales) Act (2014) Briefing No 1: November 2018

People living with neurological conditions and the Social Services and Well-being (Wales) Act (2014) Briefing No 1: November 2018

Social care is failing people living with neurological conditions in Wales

 The Social Services and Well-being (Wales) Act (2014) has now been law in Wales since 6th April 2016 and aims to transform the way that social services are delivered.

The Cross-Party Group on Neurological Conditions (CPG) asked the WNA to collect information on how the implementation of the Act is having an impact on people with neurological conditions.

We conducted a survey of people living with neurological conditions in Wales and this found that people living with neurological conditions are missing out on vital support and services;

  • 73% have not been offered or requested a formal assessment;
  • 80% did not receive any services from a local council as a result of a care plan;
  • 64% did not see any information that would help them with a social care or support need; and only 37% were given advice from a professional that would help with a social care need;
  • 79% have not been referred to other organisations for support;
  • 46% have paid out of their own money for additional support.

Mark Isherwood AM, Chair of the Cross Party Group on Neurological Conditions said;

‘We are deeply concerned that a significant number of people living with neurological conditions are missing out on vital support and services.

‘Local Authorities and Local Health Boards are duty bound to conduct a population needs assessment but it is clear from our report that they need to do a lot more to better understand the needs of people living with neurological conditions who may be in need of services’.

Ana Palazon Chair of the Wales Neurological Alliance which conducted the survey on behalf of the Cross Party Group, added;

‘There are an estimated 100,000 people living with a neurological condition in Wales.

‘Our survey found that people living with neurological conditions are not being asked what matters to them; they are not being made aware of their rights to an assessment, not getting information about support and advice services, and having to pay out of their own pocket for support.

‘The Social Services and Well-being Act has now been in force for over two years and it is wholly unacceptable that we find ourselves in this position today’.

People living with neurological conditions and the Social Services and Well-being (Wales) Act November 2018 (1) Pobl sydd yn byw gyda chyflyrau niwrolegol a Deddf Gwasanaethau Cymdeithasol a Llesiant (Cymru)Tachwedd 2018 (1)
Cross Party Group on Neurological Conditions 4th December 2018 6:30 – 8 pm

Cross Party Group on Neurological Conditions 4th December 2018 6:30 – 8 pm

Cross Party Group on Neurological Conditions

You are invited to attend our next meeting:

Conference room 5, Ty Hywel NAW Cardiff Bay

4th December 2018 6:30 - 8 pm

Sponsored by Mark Isherwood AM

Our theme for the meeting will be;

Progress of the Social Services and Wellbeing Act (2014) for people living with neurological conditions in Wales.

We will consider this topic in the context the findings of the Wales Neurological Alliance survey on social care.

RSVP to: wnacoordinator@gmail.com

Cross-Party Group for Neurological Conditions 28.07.17 12:00-13:30

Cross-Party Group for Neurological Conditions 28.07.17 12:00-13:30

Mark Isherwood AM would like to invite you to the next meeting of the Cross-Party Group for Neurological Conditions to be held at; National Assembly for Wales North Wales Visitor & Information Visitor Centre Princes Drive, Colwyn Bay LL29 8PL or Ty Hywel, National Assembly for Wales (video conference) If you are able to attend, please could you email wnacoordinator@gmail.com All Welcome
WNA Annual General Meeting 3rd July 2017 -12.00-16.00 – The Norwegian Church Cardiff Bay

WNA Annual General Meeting 3rd July 2017 -12.00-16.00 – The Norwegian Church Cardiff Bay

The AGM will vote on a number of amendments to the constitution to make it more relevant to the needs of The Alliance.  Members will also vote to elect members of the WNA Executive Committee.  All are welcome to attend however only WNA members have voting rights.  For further details please contact wnacoordinator@gmail.com. Annual General Meeting minutes 03.07.17 (2)