Dear friend I would like invite you to the North Wales meeting of the Cross-Party Group for Neurological Conditions. The Cross-Party Group for Neurosciences was formed by the Wales Neurological Alliance in 2009 with North Wales AM, Mark Isherwood, as its chair, and seeks to raise awareness about neurological conditions and improve services across Wales. The Cross-Party Group is a forum to influence Assembly Members so most of the meetings are held in the National Assembly for Wales, but we are now organising the meeting in North Wales and would be grateful if you could attend. On Friday 14 November 2014 we will be holding the North Wales meeting at the Oriel House St Asaph from 2 p.m. to 4 p.m. The meeting will focus mainly on the Welsh Government Neurological Conditions Delivery Plan and how this is being implemented locally. There will be Professor Matt Makin and Annette Morris from the BCUHB Neuroscience Network, and Dr Peter Enevoldson from the Walton Centre as guest speakers. We want to bring as many people living with different neurological conditions together so that people can air their views to senior officials at the Walton Centre and from the Health Board, and raise particular problems they face with North Wales Assembly Members. We need to know who is planning to attend, so if you are, please RSVP by 1.11.14 to firstname.lastname@example.org? If you would like any further information about the meeting, please contact Urtha Felda 07920 429 477.
Exclusive member news stories coming soon.
MON 13 MAY 2013 - ME RECOGNITION & CARE 'LACKING' Calls for 'specialist care' for people with ME
People with the condition ME say there are no specialist services for them in Wales, and they are often confronted with a lack of sympathy and knowledge in the NHS and social services.Read the full story: http://www.itv.com/news/wales/2013-05-13/calls-for-specialist-care-for-people-with-me/
The Assembly Cross Party Group for Neurological Conditions, an all party group of Assembly Members chaired by North Wales AM, Mark Isherwood has recently undertaken a review of Neurophysiotherapy services in Wales. The inquiry found that although there is evidence of good practice within physiotherapy services, availability of specialist Neurophysiotherapy services across Wales is inconsistent. Taking evidence from people who have neurological conditions, the Chartered Society of Physiotherapy (CSP) and Local Health Boards, the report suggests that the Welsh Government should establish a working group to take forward 12 key recommendations. Chair of the Assembly Cross Party Group for Neurological Conditions, Mark Isherwood AM said, “This report makes serious and well informed recommendations which I now hope will be given full and proper consideration by both the Welsh Government and our Health Boards”. Helen (who has Parkinson’s) contributed to the report expressed that people with Neurological conditions need access to specialist physio as soon as possible after diagnoses but felt that some services miss this, she calls for “more physios with specific neurological experience and knowledge”. The inquiry concluded that over 100,000 people are living with a neurological condition in Wales and most could benefit from physiotherapy or from self managed exercise classes with the right support. There are networks of talented physiotherapists across Wales, who with the right training, support from specialists, and by working through multidisciplinary teams, could make a positive impact to the lives of people living with neurological conditions. Philippa Ford, Policy Officer for the Chartered Society of Physiotherapy in Wales said, “The recommendations will provide a focus for the Health Boards to examine current services and address some of the challenges. The setting up of a working group (if Welsh Government agrees to this suggestion) will provide an opportunity for physiotherapy services to learn from each other and share innovative practice." Joseph Carter is the Chair for the Wales Neurological Alliance, the umbrella organisation representing over 30 charities including Parkinson’s UK, Shine Cymru and MS Society Cymru, added, “Physiotherapy can make a real difference to people living with neurological conditions, but there are still barriers in accessing it. We are calling on the Welsh Government to consider our report and deliver the services that our service users need.” The full recommendations are as follows:
- Local Health Boards expand self-referral so that anyone with a neurological condition who would benefit from physiotherapy can self-refer to local physiotherapy services
- Local Health Boards establish regular neurological multi-disciplinary teams so that service users can access physiotherapy and other support. These teams must have access to appropriate rehabilitation facilities including the ability to refer to inpatient.
- An expansion in the number of clinical specialist neuro-physiotherapy roles so that every Local Health Board (LHB) has a specialist neuro-physiotherapist for ABI, MS, Parkinson’s disease, neuro muscular disease (NMD), spinal cord injury, stroke and specialist neuro-physiotherapists to provide support for rarer conditions such as spina bifida or Huntingdon’s disease
- We recommend that Local Health Boards Organise specific neurological skills rehabilitation courses for generic physiotherapists in order to improve skills within the community and within hospitals
- Local Health Boards review access to all training across professions in order to maximise appropriate professional skills development within limited training budgets
- The Health and Social Care Committee considers whether the All Wales Medicines Strategies Group should appraise equipment and technology and question whether they are cost effective as part of the upcoming inquiry on access to medical technologies in Wales
- Local Health Boards evaluate and standardise the use of specialist equipment for patients with complex needs so a common level of service can be expected when patients transfer closer to home, or to their own home, for continued rehabilitation
- The Welsh Government considers commissioning a review of hydrotherapy provision across Wales to ensure those people with neurological conditions who might benefit from hydrotherapy are able to access it, both as in-patients and out-patients
- The Welsh Government continues to work with Local Health Boards to fund an expansion of telemedicine and telecare technology across Wales.
- Heads of Therapies promote the use of validated outcome measures so that physiotherapy for people living with neurological conditions is provided for the appropriate length of time that is commensurate to their needs.
- The National Exercise Referral Scheme be expanded into all neurological conditions to support individuals to self-manage their condition
- Local Health Boards review their specialist physiotherapy facilities to determine appropriate access for community use