News

News

WNA Annual General Meeting 14 April 2016 – 4.15 – 5pm All Nations Centre

WNA Annual General Meeting 14 April 2016 – 4.15 – 5pm All Nations Centre

The WNA AGM will be held immediately after the WNA Research Conference on the 14 April 2016. The AGM will vote on a resolution to alter the WNA constitution to make it more relevant to the needs of the Alliance. Members will also vote on new members of the WNA Executive Committee. All are welcome to attend. Only WNA members have voting rights. Further details please contact wnacoordinator@gmail.com.  
From the lab to the living room conference programme – Cardiff Thursday 14 April 2016

From the lab to the living room conference programme – Cardiff Thursday 14 April 2016

The programme for our conference on the benefits of co-production in research into neurological conditions is below. We will be updating this page regularly as presentation and workshop titles are confirmed, so please check back. To book your place, visit our event page.
09.30 Registration  
10:00 Introduction and welcome Chair: Ana Palazón
10.10 Health and Care Research Wales: Ensuring the public are at the heart of knowledge creation and mobilisation Prof Jon Bisson, Director, Health and Care Research Wales
10.35 Co-production in Research and Improvement Danny Antebi, (formerly Aneurin Bevan Continuous Improvement)
11.00 Coffee  
11.25 Workshop / breakout session 1  
The good, the bad, the ugly of co-production in Huntington's Disease research   Professor Monica Busse, Cardiff University Dr Laura Bunting, HCRW Brain Repair and Intracranial Neurotherapeutics (BRAIN) Unit, Cardiff University Natalie Simon, HCRW Barbara Moore, HCRW
A Parkinson’s patient perspective on co-production David Murray
12.30 Lunch  
13.30 Workshop / breakout session 2  
Developing patient reported experience and outcome measures for stroke and neurological conditions for Wales: driving quality and equity. Michelle Price
Patient and Public Involvement - supporting a future of better research. Isabelle Abbey-Vital, Research Involvement Officer, Parkinson’s UK
Building it together: Peer coaching for people after stroke – a feasibility trial. Dr Sion Williams, Bangor University Phil Keir Rex Seddon Patricia Masterson
14.30 Co-production: a ‘layered approach’ in stroke care Professor Chris Burton, School of Healthcare Sciences, Bangor University
14.55 Coffee  
15.20 Title TBC Dr Jon Stamford, Cure Parkinson’s Trust
15.45 Roundup Comments gathered through the day and closing remarks Chair
16.00 Finish  
WNA PHW PROMS and PREMS Focus Groups – Feb/March 2016

WNA PHW PROMS and PREMS Focus Groups – Feb/March 2016

In conjunction with PHW, WNA are running a series of focus groups to help inform national patient reported measures - PROMS and PREMS in February and March 2016. The events are aimed at patients, carers and former patients only and are being held on the following dates: 18 February 16 - Cardiff 24 February 16 - Llandrindod Wells 2 March 16 - Carmarthen 8 March 16 - St. Asaph For booking please send name, contact details and location of focus group to wnacoordinator@gmail.com. WNA PHW PROMS AND PREMS Focus Group invite
The benefits of co-production in research into neurological conditions

The benefits of co-production in research into neurological conditions

From the lab to the living room – the benefits of co-production in research into neurological conditions Thursday 14 April 2016 All Nations Centre, Cardiff This conference will explore the benefits of a co-productive approach for researchers and participants in the context of the current research environment in Wales. Through an engaging mix of speakers and breakout sessions, the event will demonstrate how co-production can increase the potential to translate research findings into real life outcomes that benefit people with neurological conditions. The event is aimed at academic researchers, clinical practitioners, people living with neurological conditions, funding bodies, policy makers, and relevant third sector organisations. Contributors confirmed so far:
  • Professor Jon Bisson, Director, Health and Care Research Wales
  • Professor Chris Burton, Noreen Edwards Chair of Rehabilitation and Nursing Research, School of Healthcare Sciences, Bangor University
  • Professor Monica Busse, Deputy Head of School, Research and Innovation, Cardiff University
  • Isabelle Abbey-Vital, Research Involvement Officer, Parkinson’s UK
  • Dr Sion Williams, School of Healthcare Sciences, Bangor University
The event is free. Please note, however that if you register but do not attend you will be invoiced for £50 to cover our costs. Exhibition stands are available at no cost to WNA members and at £50 to non-members. Please email wna.research@gmail.com for more information. Book your place here Download the English flyer Download the Welsh flyer
WNA Cross Party Group 9 February 2016

WNA Cross Party Group 9 February 2016

The next meeting of the WNA Cross Party Group hosted by Mark Isherwood, AM is to be held in Ty Hwyel, Cardiff Bay on the 9 February 2016 with video conferencing in North Wales (venue tbc). The meeting will include the CPG AGM, an update from Caroline Lewis on the Wales Neurological Conditions Delivery Plan and member updates. The member updates will be from Migraine Action and ME Support in Glamorgan. All welcome but please let us know if you plan to attend by emailing wnacoordinator@gmail.com