People with the condition ME say there are no specialist services for them in Wales, and they are often confronted with a lack of sympathy and knowledge in the NHS and social services.Read the full story: http://www.itv.com/news/wales/2013-05-13/calls-for-specialist-care-for-people-with-me/
- Local Health Boards expand self-referral so that anyone with a neurological condition who would benefit from physiotherapy can self-refer to local physiotherapy services
- Local Health Boards establish regular neurological multi-disciplinary teams so that service users can access physiotherapy and other support. These teams must have access to appropriate rehabilitation facilities including the ability to refer to inpatient.
- An expansion in the number of clinical specialist neuro-physiotherapy roles so that every Local Health Board (LHB) has a specialist neuro-physiotherapist for ABI, MS, Parkinson’s disease, neuro muscular disease (NMD), spinal cord injury, stroke and specialist neuro-physiotherapists to provide support for rarer conditions such as spina bifida or Huntingdon’s disease
- We recommend that Local Health Boards Organise specific neurological skills rehabilitation courses for generic physiotherapists in order to improve skills within the community and within hospitals
- Local Health Boards review access to all training across professions in order to maximise appropriate professional skills development within limited training budgets
- The Health and Social Care Committee considers whether the All Wales Medicines Strategies Group should appraise equipment and technology and question whether they are cost effective as part of the upcoming inquiry on access to medical technologies in Wales
- Local Health Boards evaluate and standardise the use of specialist equipment for patients with complex needs so a common level of service can be expected when patients transfer closer to home, or to their own home, for continued rehabilitation
- The Welsh Government considers commissioning a review of hydrotherapy provision across Wales to ensure those people with neurological conditions who might benefit from hydrotherapy are able to access it, both as in-patients and out-patients
- The Welsh Government continues to work with Local Health Boards to fund an expansion of telemedicine and telecare technology across Wales.
- Heads of Therapies promote the use of validated outcome measures so that physiotherapy for people living with neurological conditions is provided for the appropriate length of time that is commensurate to their needs.
- The National Exercise Referral Scheme be expanded into all neurological conditions to support individuals to self-manage their condition
- Local Health Boards review their specialist physiotherapy facilities to determine appropriate access for community use
National Assembly for Wales Cross-Party Group for Neurosciences Inquiry into the understanding of neurological conditions within Emergency Units Over 100,000 people are affected by a neurological condition in Wales, yet far too often staff at Emergency and Admissions Units and other non-specialist elements of the NHS in Wales, do not know how to identify the underlying symptoms of neurological conditions and fail to contact specialists. Read the full report in English or Welsh.