Motor Neurone Disease (MND) is a fatal rapidly progressive neurodegenerative disease that can affect any adult at any time. Five people die every day in the UK from MND. The vision of the MND Association is a world free of MND. Our mission is to fund and promote research to bring about an end to MND. Until then, we will do all that we can to enable everyone with MND to receive the best care, achieve the highest quality of life possible, and die with dignity. We will also do all that we can to support the families and carers of people with MND.
The HDA exists to support families affected by Huntington's disease. It also provides information and advice to professionals whose task it is to support these families. The Association has a central information, advice and support service, a regional care advisory service and local branches and support groups. It offers a Helpline Service during office hours, a twice yearly Newsletter, Publications and information and a Welfare Grant Fund
Headway exists to promote understanding of all aspects of brain injury and to provide information, support and services to people with a brain injury, their families and carers. It does this locally through a network of local Groups and Branches throughout the UK and Channel Islands offering a wide range of services, including rehabilitation programmes, carer support, social re-integration, community outreach and respite care. Nationally Headway UK provides support to the local Groups and Branches and helps to deliver high quality services through guidance on policies, procedures, standards and training.
Dear friend I would like invite you to the North Wales meeting of the Cross-Party Group for Neurological Conditions. The Cross-Party Group for Neurosciences was formed by the Wales Neurological Alliance in 2009 with North Wales AM, Mark Isherwood, as its chair, and seeks to raise awareness about neurological conditions and improve services across Wales. The Cross-Party Group is a forum to influence Assembly Members so most of the meetings are held in the National Assembly for Wales, but we are now organising the meeting in North Wales and would be grateful if you could attend. On Friday 14 November 2014 we will be holding the North Wales meeting at the Oriel House St Asaph from 2 p.m. to 4 p.m. The meeting will focus mainly on the Welsh Government Neurological Conditions Delivery Plan and how this is being implemented locally. There will be Professor Matt Makin and Annette Morris from the BCUHB Neuroscience Network, and Dr Peter Enevoldson from the Walton Centre as guest speakers. We want to bring as many people living with different neurological conditions together so that people can air their views to senior officials at the Walton Centre and from the Health Board, and raise particular problems they face with North Wales Assembly Members. We need to know who is planning to attend, so if you are, please RSVP by 1.11.14 to firstname.lastname@example.org? If you would like any further information about the meeting, please contact Urtha Felda 07920 429 477.
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