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‘Providing a powerful Welsh voice to express the shared interests of people affected by neurological conditions’

 
 
 

Our Work

The Alliance has been busy and productive during 2009 and 2010. Our membership continued to grow and our networks widened as we strengthened our partnerships with local alliances around Wales and forged strong relationships with several professional groups and organisations.

Over this period, the Alliance:

•  Contributed to the deliberations on the future of neuroscience health services planning and delivery following publication of the Steers Review.
Undertook a questionnaire survey of individuals living with neurological conditions in Mid & South Wales.
Strengthened our links and networking with the Cross Party Group of Neurosciences in the National Assembly for Wales.
Submitted responses to several Welsh Assembly Government and National Assembly for Wales consultations and inquiries.
Participated in several Welsh Assembly Government working groups.
Improved communications and networking with members by producing a regular news sheet keeping members informed about the Alliance’s work.

Key areas of work that the Alliance is involved in:

•  Wales Neurosciences Review
Patient Priorities for Neuroscience Service Development
in North, Mid & South Wales
Cross Party Group for Neurosciences
Proposed Social Care Charges (Wales) Measure
Symptom Management Study Days (SMSDs)
Task & Finish Group on Care Pathways for Long Term
Neurological Conditions – Report
All Wales Posture and Mobility Review – Phase Two Project Board
Adult Social Care – Law Commission Consultation Paper No. 192
Welsh Association of ME and CFS Support (WAMES)
Carers Strategies (Wales) Measure 2010
Map of Medicine
Thomas Report - Access to Specialist Neuromuscular Care in Wales
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